I wasen't sure how to title this post, so I've left it blank... Lucas has been up since 2am, I have no idea how I'm going to survive the day on the little sleep I've had. Today we have to go to childrens, meet with the cardiology dept and also have pre op testing. They still aren't totally 100% positive that they will do surgery on 8/3, hopefully they finally make up there mind today. I honestly think that they might be looking for something that isn't there. He has a minor heart murmur, that I was told probably wouldn't ever need correcting, that its nothing to worry about, and his own cardiologist cleared him for surgery on Tues. However, the cardiologist in Boston aren't happy with that. I know kids with WS normally have issues with there aortic valve and what not, but Lucas dosen't according to his cardiologist he has issues with his pulmunary valve being shortened. I really just want/need this overwith, I'm not sayin that I want him to have surgery if its not safe, but I think that there has been enough time for the cardiologist to say hay, lets get a sedated ecco here to be safe now, instead of waiting for the day of surgery, why couldn't they schedule that before, its been 1 mos since we decided surgery was the best option, WHY do they need to wait til now, acouple days post surgery to start thinking they might want one?????? IDK, hopefully todays visits go well, I'll post more later...