Well, since my last post alot has happened. Lucas had a stomach emptying study and his GI has decided that he needs to have a fundoplication and also a pyloplasty. Both of these surgeries scar the cr*p out of me so we are going to have a 2nd opinion and consult with the surgeon before making a decision about what to do. Until then Lucas is on minimal calorie count and basically just getting enough to survive. He is still fussy most of the time and has started to have temper tantrums but since he can't talk, walk or crawl, he just screams at the top of his lungs until he gets what he wants, its made for some very long nights. He is however, able to sit independently for about 5mins, sometimes longer, which is something we've been working on for a while.
We also found out that his appointment for the Williams Syndrome clinic has been moved to oct 14, 15,16th this is exciting since we originally couldn't get in til January, I'll be excited to see what they have to say and if they can help with his sleeping issue.
Dylan dosen't like soccer very well, he keeps telling everyone this is a practice for when he can play football. We went to the circus last weekend as a suprise, Lucas went to grammy's and Dylan, Daddy, and me went to the Circus, he enjoyed seeing the clowns, elephants, and tiger.
I'll post more later since Lucas just woke up.
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