Tuesday, June 9, 2009
He found the tube.....
So yesterday was an interesting day. I woke up to Lucas CHEWING on his g tube, he didn't pull it out but since he was still hooked upto the machine there was slack there, and he was chewing on it. I almost passed out.. I've been alittle weirded out about the whole feeding tube thing, and to find him chewing it was totally disturbing to me, so one of my goals today is to "find a fix". Yesterday he also had his first PT visit. They showed me how to apply pressure to Lucas to help him "find his parts" I've never heard of this before, and I'm not sure how it will help but I did notice that it did calm him down, so we'll try it. They also explained to me that he favors 1 side when he rolls so I need to start helping him roll to his right instead of his left. After that we rushed to Grammy's house to go to a birthday party for Brady, Dylan was sooo excited he was in the car before PT even left our driveway. He had such a good time, he had cake an totally kicked butt hitting the penguin pinata, and the best thing was the bounce house. He totally loved the bounce house with the truck on top. He was in that thing for most of the night, and talked about it most of the ride home, until he fell asleep. This had been the first time that side of the family had seen Lucas since the diagnosis of WS and everything else, and even though I was nervous, I think it went over well. We don't see that side of the family alot so it won't be in there face so much, but it was still nice to see that they accepted him, issues and all. Dylan still "air fishes" yesterday during Lucas's PT he came running in to tell me that he caught a shark in the neighbors yard, and I had to go help him "reel'r in mama". Goals for today are to find gauze and the pee pads they use in the hospital so I don't have to keep washing his bouncy seat every morning, contact the neurosurgeon to see if she has reviewed the swallow study results, scrapbook, start an esty, and bake with Dylan. Since its raining today, I think I'll also let Dylan blow bubbles at the windows so I can wash them.
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