We had an OT visit today and they brought PRESENTS.... They brought Lucas a Tumble Forms feeding seat w/base. He looks so stinken' cute in that seat. His OT, Jeanine, also showed me how to massage his gums, and different strategies to get him to start eating food, we are going on 2 mos with no food other than formula. His appetite hasn't been what it should be, but I'm hoping its due to the fluid they said is in his ear. I also realized the amount of jealousy that Dylan has towards all the attention that Mr Lucas is getting. During the OT visit, Dylan asked if he could go sit on the stairs I said yes, since it was the first time it had stopped raining, next thing I know Mr Dylan is standing on our stairs in my front yard with his pants around his ankles peeing, yup, that's right, he was peeing in my front yard for the whole world to see. I almost died in embarrassment...
I've also decided that after much thought and research I've scheduled Lucas for a 2ND opinion on his tethered spinal cord, I just don't think that's a surgery that should be delayed until "something happens" So with that said Lucas will be going to Boston Childrens Hospital to see a Neurosurgeon there. Other than that, nothing much else happened today. Since its rained most of the day, we didn't get to do much.
Monday, June 15, 2009
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